This vest was lost. She couldn't wear turtlenecks after getting the "trach". She couldn't be in her wheelchair without her TLSO (thoracic lumbar sacrum orthosis) a couple years after this photo was taken because her back kept curving more and more. She didn't care about any of that. She loved life. She was joyful.
That is completely how I think of her -- joyful. And I am grateful to have known her as her smile is imprinted on my heart. I can still feel her in my arms when she was baby -- what that felt like.
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